HHTHereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu Syndrome, is an inherited disease that leads to malformed blood vessels in multiple organs of the body and typically begins with nosebleeds during childhood. HHT can result in serious health problems if not promptly diagnosed and treated. Our mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.
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DIAGNOSIS & TREATMENT
Understanding the important steps to diagnose and manage HHT can be life-saving. |
SIGNS & SYMPTOMS
Some people with HHT may show almost no signs of the disease up until their fourth or fifth decade of life. It’s common for people with HHT to have symptoms that can only be detected by a physician who is familiar with HHT. |
RESEARCH
HHT Research makes exciting strides each year, gaining new insights into the cause, development, progression, and treatment of this disease. |